We met with Hospice last night, they will be taking over. He called them because he doesn't want to be in pain anymore and has finally realized that he doesn't need to be. Initially they will take on a managerial role and get his pain under control while he is home. He has lost a ton of weight, I would bet he has lost about 20-25 pounds since the last oncology appt in March. This is the part that sucks, watching him waste away. We will know a great deal more after Friday's appointment, we will get the results of his CT scan from Friday. We know that the Avastin (maintenance chemo) stopped working a few months ago and have agreed that the Tarceva doesn't seem to be making any kind of difference. So we shall see how far things have progressed and/or spread since the end of March.
I have to put out two requests:
I have heard some of you would like to help. There are things (mowing the lawn is a big one) that will need to be done that help would appreciated. So if anyone who could help, even if it is mowing the lawn once, please email me. I will be trying to get together some sort of schedule for things. One large thing my sisters discussed last night too is to ask people to pop in sometimes. We think it is important for Dad to still have some contact with "outside" people now that he will be pretty much confined to the house. So please keep him in your thoughts and maybe stop in if you have an hour or so. He isn't super chatty or anything, but we think it may lift his spirits. I think he is to the point that he is too tired to fight anymore. I cannot be angry or fault him for it, he has fought an exceptional fight for two years now. At this point I want him to stop hurting and be at peace. I am sorry if that sounds bad.
I can't and don't want to talk about it much more today but I wanted to update all of you. I have been preparing myself for this for two years and it still takes me a little time to wrap my mind around things when they take a turn. I am sure you can all understand. I will post Friday or Saturday sometime after the appt.
-me
Wednesday, June 11, 2008
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