Sunday, Sunday, Sunday

We (me & my children) went to visit for a while today. My son was being a poophead - I was told he was actually just being a boy. (very busy and testing me a lot)

Anyway, Dad was not feeling his best today. His back was sore, but he was still in good spirits. The steroids are done now so he will have to take more pain pills. He had a bad day a while ago, he has new appreciation for detoxing drug addicts. The radiation was reducing his pain so he didn't take his pain pills - not such a good idea to quit cold-turkey like that. He is worried about his consistent weight loss, he is even eating more to try to compensate. He is losing 1-2 pounds a week and we know that is probably not a good sign.

He will be getting another bone scan, which I hope to post an image, the same day he gets his new CT scan. (March 12th) We see the Oncologist on the 16th and we should have the results of both scans that day. We should also know if he qualifies for the clinical trial. They had to check to see if there was enough tissue left from his liver biopsy from June to test for the marker on the cancer cells. The marker must be present for him to be eligible. If there is not enough tissue, they will have to do another biopsy. He also has to wait at least two weeks after radiation is done. He said he wishes he didn't have to wait so long - I think if it was up to him he would start tomorrow.

He said he has already signed the consent forms to be part of it if he qualifies. I have to say I am worried as well. There are many, many possible risks and side effects to it - about 6-8 pages of them and one sentence under "benefits".

So that is what I know. We are so fortunate we are getting "extra" time to spend with him. He is very fortunate to be as well as he is at this stage of things.

He said if he wants to know how he is feeling, he will check this blog....SO DAD, YOU FEEL GREAT!!!

He said some of you have tried to post comments and either are having difficulty or do not know how. You are always welcome to email me directly by clicking on "view my profile", then there is an email link. I can post your comment or tell you how. You should just be able to click on post comment, I changed it a while ago so you do not have to register to post. You do have to type in some random letters to verify because I had a spam comment and I don't want spam comments.