Frustrated!!!

4:15 pm

Ok - so far I have tried to post objective info and try not to let any personal feelings get in, however, today I need to say I am beyond frustrated! That out of the way, I will try to be as calm as I can with this post.

We met with the oncologist and found out nothing! In fact they had canceled his appointment because Zeeland hospital still had him listed as admitted there. So, the Dr. saw him very quickly. Here is where it gets frustrating...

-the oncologist had no info on the initial biopsy
-had no knowledge of the second one yesterday
-had no verbal results from the PET scan from this morning
-could not read the PET scan image cd he was given by Ruth
-never let me ask even one question (personally frustrating as I am an information junkie, helps me cope)

They did draw a blood sample. They are looking for basic things such as: iron levels, iron binding, metabolic counts (potassium, cholesterol, hemeglobin, etc.) I would imagine this is for comparision to all the others. Especially important for his amenia.

I am concerned that he is retaining fluids. According to Ruth, there was a 10 pound difference between Sunday and Yesterday. There was also a 6 pound difference between yesterday and today and a two pound difference from the PET scan this morning and the oncologist's office this afternoon - so unless the scales need to be fixed, something is suspicious in my eyes. (From office to office, scales are not usually that far off.) He hasnt eaten anything since pretty much 7 last night.

As for Dad, he was so sick to his stomach from the crap he had to drink for the PET scan he could barely walk or even keep his eyes open. So we got a script for some nausea meds, that Heidi ran to get, so by the time we left there he was looking better and felt better.

So the waiting continues - he has another appointment at the oncologists next friday. They should have the second biopsy results Monday afternoon and the PET scan results, they are suppose to call with that.

AS far as I know his bone scan is still on for Wednesday. So hopefully the appointment next Fiday will actually be useful.

I will call tonight to see if they spoke to his primary Dr. about the possibility of fliud retention or if there was any PET scan results that he has seen.

On the GOOD NEWS side -- Jodi's baby is such a cute little peanut! 1 week old today!! Congrats! She had a check-up today - Mom & baby are well.

I do not foresee anything new to post until Monday. I will post if I find out anything new, otherwise I will post Sunday after I see him.

Everyone please think good thoughts and prayers and forgive my ranting today! Have a good weekend.